Scandalous and no doubt a contirbuting factor to my rude, dismissive treatment whenever referred to hospital for tests etc
Epidemic Myalgic Encephalomyelitis: A Demand for Urgent Action and Accountability - PlateletGal's Journal - MedHelp:
"The CDC has systematically failed its mission to protect the health of the global community with regard to the uncontrolled spread of the pandemic neurological and multiple systemic disease Myalgic Encephalomyelitis,to prevent the chronic lifelong disability, suffering and needless deaths ithas wreaked on the lives of millions of people around the world since the CDC became negatively involved with this infectious disease 25 years ago while in the midst of the AIDS pandemic. The CDC ignored the growing epidemics, theCheney/Peterson biomarkers and historical evidence by constructing CFS and pretending it was a new condition.
It has failed to educate the public about the 75 year epidemic history of M.E., to educate the medical profession with appropriate guidelines to care for the patients, to fund research and provide treatmentsfor the disease, and critically to ban blood donations and stop the spread ofthis disease. It has failed its mission and goals, denying the epidemics, focusing wrongly on fatigue and psychosocial factors, pursuing meaningless research studies, and subjecting sufferers to uninformed medical neglect andhuman rights abuses. Advising doctors not to do the very tests that wouldconfirm the disease? That is CDC policy.
It began with a botched investigation of a major outbreakof M.E. in a tourist village at Lake Tahoe, where the CDC ignored thebiomarkers found by Drs Cheney and Peterson which validated the disease, and continuing to the present day with its 25-year marketing exercise in rebranding this serious disease similar to M.S. and Post Polio Syndrome as CFS, renaming and redefining it as a vague fatigue state via the unscientific Fukuda and Holmes definitions and further reducing it to a �"