Wednesday, October 29, 2014

Study finds brain abnormalities in chronic fatigue patients | News Center | Stanford Medicine

Study finds brain abnormalities in chronic fatigue patients | News Center | Stanford Medicine



Q for neurologist ...normal white matter volume?

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Sunday, October 26, 2014

USA social security criteria for people with M.E. and/or fibromyalgia.

Very interesting article by disability lawyers regarding USA social security criteria for people with M.E. and/or fibromyalgia. "I. What is CFS? In determining a case of CFS, the first portions of this section (A. and B1.) largely follow the 1994 CDC definition, the text of which can be found on page 3 of the Ruling. Following the CDC definition, the Ruling makes clear that a “physician should make a diagnosis of CFS ‘only after alternative medical and psychiatric causes of chronic fatiguing illness have been excluded.” Also, the Ruling makes an important addition to the CFS Case Definition by noting that post-exertional malaise lasting more than 24 hours “…may be the most common secondary symptom.” So it will be very important for patients and doctors to document this symptom/sign. However, in section B2., “Other Symptoms”, the Ruling expands the list of CFS diagnostic symptoms as more recently outlined in the Canadian Criteria and the International Consensus Criteria:“Other Symptoms. Within these parameters, the CDC case definition, CCC, and ICC describe a wide range of other symptoms a person with CFS may exhibit: •Muscle weakness; •Disturbed sleep patterns (for example, insomnia, prolonged sleeping, frequent awakenings, or vivid dreams or nightmares); •Visual difficulties (for example, trouble focusing, impaired depth perception, severe photosensitivity, or eye pain); •Orthostatic intolerance (for example, lightheadedness, fainting, dizziness, or increased fatigue with prolonged standing); •Respiratory difficulties (for example, labored breathing or sudden breathlessness); •Cardiovascular abnormalities (for example, palpitations with or without cardiac arrhythmias); •Gastrointestinal discomfort (for example, nausea, bloating, or abdominal pain); and •Urinary or bladder problems (for example, urinary frequency, nocturia, dysuria, or pain in the bladder region).” As will be seen later, the inclusion of these common elements of CFS allows for an increased ability to provide medical evidence of the illness in terms of the necessary documentation of medical signs and laboratory testing. In the last subsection 3 is the following text: “Co-occurring Conditions. People with CFS may have co-occurring conditions, such as fibromyalgia (FM), myofascial pain syndrome, temporomandibular joint syndrome, irritable bowel syndrome, interstitial cystitis, Raynaud's phenomenon, migraines, chronic lymphocytic thyroiditis, or Sjogren's syndrome. Co-occurring conditions may also include new allergies or sensitivities to foods, odors, chemicals, medications, noise, vibrations, or touch, or the loss of thermostatic stability (for example, chills, night sweats, or intolerance of extreme temperatures).” Here, again, the new Ruling (based on the more recent CFS/ME and ME definitions) includes many more of the essential elements of the illness that increase the physician’s ability to provide medical documentation. Many of these “co-occuring conditions” are essential symptoms of CFS and their documentation add to diagnostic clarity. Notably, multiple sensitivities and loss of thermostatic stability have for years been known to patients and educated clinicians, but are now just being fully recognized. Other conditions that may explain symptoms similar to CFS: The Ruling reads: “Additionally, several other disorders (including, but not limited to FM, multiple chemical sensitivity, and Gulf War Syndrome, as well as various forms of depression, and some neurological and psychological disorders) may share characteristics similar to those of CFS. When there is evidence of the potential presence of another disorder that may adequately explain the person's symptoms, it may be necessary to pursue additional medical or other development. As mentioned, if we cannot find that the person has an MDI of CFS but there is evidence of another MDI, we will not evaluate the impairment under this SSR. Instead, we will evaluate it under the rules that apply for that impairment.” Therefore, in documenting a diagnosed case of CFS, the treating physician(s) should not only document any co-occuring conditions, but also should be sure to, if possible, clearly differentiate CFS from other conditions that may share over-lapping symptoms." Link

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Wednesday, October 08, 2014

A wolf in sheep’s clothing: how Monitor is using licensing powers to reduce hospital and community services in England under the guise of continuity | The BMJ

A wolf in sheep’s clothing: how Monitor is using licensing powers to reduce hospital and community services in England under the guise of continuity | The BMJ

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Tuesday, October 07, 2014

How it felt at first with chronic fatigue syndrome

How it started for me too "I had woken up barely able to walk. Fatigue hardly described what I felt. Paralysis was more like it. My legs seemed to have been amputated and replaced with tubes of liquid concrete, and just shifting them on the table made me grunt like an Olympic weightlifter. My bones hurt; my brain felt like a swollen mass. Speaking required tracking down and spearing each word individually as it scampered away from me." What is chronic fatigue

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Sunday, October 05, 2014

Interesting study

LISTSERV 16.0 - CO-CURE Archiveshow white

Wonder  how my white matter will show on CAT scan?

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Tuesday, September 16, 2014

Migraines and me

Have had migraines for as long as I can remember, they are now the most disabling they have ever been.....too knackered to write any more right now :( http://www.migrainetrust.org/my-migraine-journey

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Monday, December 30, 2013

Fibromyalgia solved: Not in the mind, but a very real physical ailment | Washington Times Communities

I have long said that my thermostat is bust also the part about lactic acid - I used to work out at the gym a lot and now get the lactic acid burn after for eg peeling just three spuds then the fourth becomes impossible as strength in wrists and hands fades to be replaced by "burn"...very interesting research!

Fibromyalgia solved: Not in the mind, but a very real physical ailment | Washington Times Communities

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