tag:blogger.com,1999:blog-57962062024-03-07T21:35:41.869+00:00Living & eating well as a fibromiteSurvival tips, diet, recipes, useful fibro resources, books, M.E./ CFS & fibromyalgia news.Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.comBlogger447125tag:blogger.com,1999:blog-5796206.post-88532325114526138002020-03-16T15:06:00.001+00:002020-03-16T15:06:34.004+00:00Coronavirus and fibromyalgiaWow, strange days we are living in right now! <br />
<br />
How many years since I last posted? Well pre-cancer diagnosis.<br />
<br />
Staying home and self isolating are easy after so many years practise - easy to say but it is early days yet and th supply chain for online shopping and medication requests may break under the strain of millions more people turning to them!Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-24743950380529932402016-02-10T07:15:00.001+00:002016-02-10T07:15:47.174+00:00Suggestion to replace PEM by PAR – ME blogg<a href="http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/">Suggestion to replace PEM by PAR – ME blogg</a><br />
<br />
I like the use of activity rather than exertion!Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-9456640890924286692015-07-15T06:31:00.001+00:002015-07-15T06:31:48.985+00:00Living on empty | July 10, 2015 | Palo Alto Weekly | Palo Alto Online |<a href="http://paloaltoonline.com/print/story/2015/07/10/living-on-empty">Living on empty | July 10, 2015 | Palo Alto Weekly | Palo Alto Online |</a><br />
<br />
"“This is probably one of the last major diseases we know nothing about”: A look at CFS"<br />
Lia Steakley on July 14th, 2015<br />
Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-4737040823667713492015-06-15T09:33:00.001+00:002015-06-15T09:33:23.767+00:00Standing up for Fatigue | Gresham College<a href="http://www.gresham.ac.uk/lectures-and-events/standing-up-for-fatigue">Standing up for Fatigue | Gresham College</a>Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-86346285690266016782015-04-16T07:22:00.001+00:002015-04-16T07:22:12.307+00:00Toward a clearer diagnosis of chronic fatigue syndrome -- ScienceDaily<a href="http://www.sciencedaily.com/releases/2014/04/140404085538.htm">Toward a clearer diagnosis of chronic fatigue syndrome -- ScienceDaily</a><br />
<br />
"<br />
The researchers performed PET scanning on nine people diagnosed with CFS/ME and ten healthy people, and asked them to complete a questionnaire describing their levels of fatigue, cognitive impairment, pain, and depression. For the PET scan they used a protein that is expressed by microglia and astrocyte cells, which are known to be active in neuroinflammation.<br />
The researchers found that neuroinflammation is higher in CFS/ME patients than in healthy people. They also found that inflammation in certain areas of the brain -- the cingulate cortex, hippocampus, amygdala, thalamus, midbrain, and pons -- was elevated in a way that correlated with the symptoms, so that for instance, patients who reported impaired cognition tended to demonstrate neuroinflammation in the amygdala, which is known to be involved in cognition. This provides clear evidence of the association between neuroinflammation and the symptoms experienced by patients with CFS/ME.<br />
Though the study was a small one, confirmation of the concept that PET scanning could be used as an objective test for CFS/ME could lead to better diagnosis and ultimately to the development of new therapies to provide relief to the many people around the world afflicted by this condition."Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-51577785054523043212015-02-18T19:09:00.001+00:002015-02-18T19:09:30.597+00:00What causes RBCs to become sticky in the first place<a href="http://www.justanswer.com/health/53x6z-causes-rbcs-become-sticky-first-place.html">What causes RBCs to become sticky in the first place</a><br />
<div class="JA_profile JA_other">
<span class="JA_infoLabel" id="ctl00_BodyContent_ctrlTopicDisplay_rptMainThreadList_ctl00_ThreadDisplay_lblExpertInfoLabel">Expert: </span> <a class="JA_authorName" href="http://www.justanswer.com/medical/expert-raymondbmd/" navid="navAnswer32862952">Carlos</a> <span class="repliedNote">replied 3 years ago.</span> </div>
<div class="JA_content KonaBody">
Dear JACUSTOMER 9avzrh26:Agglutination (clumping) of type A red blood cells (RBCs) by anti-A antibodies. The antibodies have two combining sites and are able to attach to the A antigens on adjacent RBCs, thus causing the RBCs to bond together.<br />
<br />
Stickiness of red blood cells or the clumping of the red blood cells together is called autoagglutination.<br />
The presence of antibodies (usually IgM) on the surface of red blood cells is responsible for the phenomenon of autoagglutination. Agglutination can be observed during immune-mediated hemolytic anemia, but also during 'cryoglobulinemia' ( a far more rare condition).</div>
<span><br /><br />Read more: <a href="http://www.justanswer.com/health/53x6z-causes-rbcs-become-sticky-first-place.html#ixzz3S7paoxo7" style="color: #003399;">http://www.justanswer.com/health/53x6z-causes-rbcs-become-sticky-first-place.html#ixzz3S7paoxo7</a></span>Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-67504942756709507972015-02-04T14:46:00.001+00:002015-02-04T14:46:25.332+00:00Breakthrough magazine | ME Research UK<a href="http://www.meresearch.org.uk/information/breakthrough-magazine/">Breakthrough magazine | ME Research UK</a><br />
<br />
"ME Research UK publishes its own magazine Breakthrough approximately twice a year, featuring updates on projects funded by the charity, recent research from around the world, information about Friends’ fundraising activities, and other articles on <acronym title="Myalgic Encephalomyelitis">ME</acronym>/<acronym title="Chronic Fatigue Syndrome">CFS</acronym> issues.<br />
Read or download back issues of Breakthrough here."Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-82482800978771969082015-02-03T09:41:00.001+00:002015-02-03T09:41:57.537+00:00Anthony Jones (Institute of Brain, Behaviour and Mental Health - University of Manchester)<a href="http://www.bbmh.manchester.ac.uk/staff/77464/">Anthony Jones (Institute of Brain, Behaviour and Mental Health - University of Manchester)</a><br />
Previous research has concentrated on the development of new techniques to identify the network of brain structures in the human brain that is involved in nociceptive processing and some of the endogenous pharmacological processes that may modify this. We were the first group to achieve these two goals. The main applications have been in musculoskeletal and post-stroke pain. Candidate mechanisms for fibromyalgia and post-stoke pain have been identified by recent PET studies; funded by our Arthritis Research Campaign program grant and previous MRC grants.Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-7306964805298162352015-01-22T10:11:00.001+00:002015-01-22T10:11:18.653+00:00The Biggest Chronic Fatigue Syndrome Treatment Trial Begins: Fluge/Mella On Rituximab | Simmaron ResearchSimmaron Research<a href="http://simmaronresearch.com/2015/01/chronic-fatigue-syndrome-rituximab-fluge-mella/">The Biggest Chronic Fatigue Syndrome Treatment Trial Begins: Fluge/Mella On Rituximab | Simmaron ResearchSimmaron Research</a><br />
<br />
"Doctor’s Fluge and Mella shocked the ME/CFS world with <a href="http://www.ncbi.nlm.nih.gov/pubmed/19566965">their 2009 </a> case series and the 29-person<a href="http://www.ncbi.nlm.nih.gov/pubmed/22039471"> 2011 stud</a>y which found that about 2/3rds of ME/CFS patients had a significant and positive response to the chemotherapy and autoimmune drug Rituximab. With some patients achieving near miraculous recoveries, the results from Norway had the ME/CFS world buzzing - See more at: http://simmaronresearch.com/2015/01/chronic-fatigue-syndrome-rituximab-fluge-mella/#sthash.SFxye1AD.dpuf"Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-48968737392294526552014-12-13T06:14:00.001+00:002014-12-13T06:14:28.672+00:00Research Digest – December 2014: 10 Important Advances in ME/CFS | Solve ME/CFS Initiative<a href="http://solvecfs.org/research_digest_2014top10/">Research Digest – December 2014: 10 Important Advances in ME/CFS | Solve ME/CFS Initiative</a><br />
While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our fieldJenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-84193937979574021812014-12-12T06:18:00.001+00:002014-12-12T06:18:50.091+00:00Why I turned down an all-expenses-paid trip to the 2011 Sydney Writer’s Festival — Medium<a href="https://medium.com/@mischahi/why-i-turned-down-an-all-expenses-paid-trip-to-the-2011-sydney-writers-festival-48186343a6a4">Why I turned down an all-expenses-paid trip to the 2011 Sydney Writer’s Festival — Medium</a><br />
<br />
Hiller nails the symptoms of ME and the impact it has on daily life.Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-3310103637099239522014-12-04T11:00:00.001+00:002014-12-04T11:00:49.409+00:00Sleep and daytime functioning in patients with chronic fatigue syndrome.<a href="http://www1.imperial.ac.uk/departmentofmedicine/divisions/brainsciences/psychopharmacology/saffe/">The SAFFE Study</a><br />
<br />
"About the study<br />
We are looking at the link between sleep and daytime functioning in patients with chronic fatigue syndrome.<br />
People with chronic fatigue syndrome (CFS) commonly describe problems with their sleep, often reporting both daytime sleepiness and unrefreshing sleep during the night, which may impact on daytime functioning. Research suggests that deep slow wave sleep may be altered in CFS.<br />
In the SAFFE study we will investigate if enhancing slow wave sleep during the night can affect day time functioning.<br />
The SAFFE study is being undertaken by the Centre for <a href="http://www1.imperial.ac.uk/departmentofmedicine/divisions/brainsciences/psychopharmacology/saffe/http:/www1.imperial.ac.uk/departmentofmedicine/divisions/brainsciences/psychopharmacology/">Neuropsychopharmacology</a> at <a href="http://www3.imperial.ac.uk/">Imperial College London</a>, and is funded by the <a href="http://www.mrc.ac.uk/index.htm">Medical Research Council (MRC)</a> of the United Kingdom. It has been approved by London Brent Research Ethics Committee: 13/LO/0882.<br />
<h2>
Who can take part?</h2>
We are currently looking for people who:<br />
<ul>
<li>Have a current diagnosis of chronic fatigue syndrome</li>
<li>Are aged between the ages of 25 and 65</li>
<li>Have a good grasp of the English language</li>
<li>Can take part in a research study at Imperial College London."</li>
</ul>
Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-31296405515364834522014-11-25T09:47:00.001+00:002014-11-25T09:47:10.533+00:00Brains of People with Chronic Fatigue Syndrome Offer Clues About Disorder - NYTimes.com<a href="http://well.blogs.nytimes.com/2014/11/24/brains-of-people-with-chronic-fatigue-syndrome-offer-clues-about-disorder/?partner=rss&emc=rss&_r=1">Brains of People with Chronic Fatigue Syndrome Offer Clues About Disorder - NYTimes.com</a><br />
<br />
It affects us seriously so too dam right it should be taken seriously!<br />
<br />
" two recent studies — one from investigators at Stanford a few weeks ago and another from a Japanese research team published earlier this year — have found that the brains of people with <a href="http://health.nytimes.com/health/guides/disease/chronic-fatigue-syndrome/overview.html?inline=nyt-classifier">chronic fatigue syndrome</a> differ from those of healthy people, strengthening the argument that serious physiological dysfunctions are at the root of the condition.<br />
<br />
<div class="story-body-text" itemprop="articleBody">
“You’ve got two different groups that have independently said, ‘There’s something going on in the brain that is aberrant,’ ” said <a href="http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-expert.html?module=Search&mabReward=relbias%3Ar%2C&#123;%221%22%3A%22RI%3A9%22&#125;">Leonard Jason</a>, a psychologist at DePaul University in Chicago who studies the condition, also called myalgic encephalomyelitis and widely known as M.E./C.F.S. “I think you have a growing sense that this illness should be taken seriously.”</div>
Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-79425155800774775312014-11-19T14:35:00.001+00:002014-11-19T14:35:36.735+00:00Novel Fibromyalgia Treatment Shows Promise in Study -- TUSCALOOSA, Ala. and BOSTON, Nov. 18, 2014 /PRNewswire/ --<a href="http://www.prnewswire.com/news-releases/novel-fibromyalgia-treatment-shows-promise-in-study-283042331.html"><span style="font-family: Arial, Helvetica, sans-serif;">Novel Fibromyalgia Treatment Shows Promise in Study -- TUSCALOOSA, Ala. and BOSTON, Nov. 18, 2014 /PRNewswire/ --</span></a><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">So often feel as if brewing 20 plus viruses ata atime ...</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">"</span><br />
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;">According to <span class="xn-person" itemscope="" itemtype="http://schema.org/Person"><span itemprop="name">Daniel J. Clauw</span></span>, M.D., director of the Chronic Pain & Fatigue Research Center at the <span class="xn-org">University of Michigan (Ann Arbor)</span>, commenting on the PRID-201 results, "IMC-1 shows promise as a potentially new treatment for the millions of people who suffer from this debilitating condition."</span></div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;"></span> </div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;">Fibromyalgia is a multi-symptom disorder involving widespread pain, fatigue, headaches, sleep problems, mood changes and inability to concentrate. Its causes are unknown. According to the National Fibromyalgia Association, an estimated 3-6 percent of people worldwide suffer from the condition—10 million people in <span class="xn-location" itemprop="contentLocation" itemscope="" itemtype="http://schema.org/Place"><span itemprop="geo" itemscope="" itemtype="http://schema.org/address"><span itemprop="addressLocality">the United States</span></span></span> alone.</span></div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;"></span> </div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;">The 16-week study evaluated the efficacy and safety of IMC-1, a fixed-dose-combination of famciclovir and celecoxib. 143 FM patients were recruited at 12 U.S. clinics. Patients received either a combination treatment of IMC-1 or a matching placebo. </span></div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;"></span> </div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;">According to Dr. Pridgen, chronic tissue-resident herpes virus may be an underlying cause of fibromyalgia. IMC-1 represents a novel treatment by combining an anti-herpes virus nucleoside analog with the anti-herpes virus activity exhibited by a COX-2 inhibitor. </span></div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;"></span> </div>
<div itemprop="articleBody">
<span style="font-family: Arial, Helvetica, sans-serif;">"Many herpes viruses are known to significantly upregulate COX enzymes in the body, which in turn are important for efficient viral replication," Pridgen said. "In theory, physical or emotional stress in patients can reactivate the virus and result in perpetuation of the symptoms of fibromyalgia. Effectively suppressing latent viruses may significantly improve the pain and related symptoms of FM."</span></div>
Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-2452984655781477912014-11-19T10:45:00.002+00:002014-11-19T10:51:35.175+00:00What's for tea?I do not have a clue right now as a migraine is still banging away (with face tingling and steak and kidney smell) for the third day on the rum Migraleve has relieved the nausea but am too pooped to manage anything more than a decaf tea and a banana so far,update to follow hopefully with some improvement.Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-57939778749202194542014-11-18T11:41:00.001+00:002014-11-18T11:41:36.076+00:00Migraine, keep it down day MondayMigraines and cooking do not really go well together managed a little marmite on toast (B vitamins) with olive spread for brunch and a plain jacket potato for tea, Pete washed them then in microwave for 10 minutes then into oven for 30 mins or so to make the skin crispy and tasty. <br />
<br />
Migraine has had me awake from 4am so time for nap after yet more marmite and toast. Exciting, huh? As long as it stays down it counts as eating well ;)Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-57002939251634147022014-11-17T12:51:00.000+00:002014-11-17T18:36:14.049+00:00Cooking with and for fibromyalgia and M.E. - mushroomy mushroomsCooking and eating can be a huge challenge for us fibromites, the crushing fatigue for those of us who have that symptom can make even thinking about what to eat a debilitating activity however I believe eating well is crucial for us to be the best we can. <br />
<br />
Migraine and irritable bowel syndrome both mean I have to be ultra careful with my diet which is above all else dairy free, closely followed by additive free which goes hand in hand with no processed foods or ready meals.<br />
<br />
We fibromites all have many different flare triggers by eliminating dietary triggers we can maybe see more clearly the other triggers. <br />
<br />
The list of dietary exclusions may make you think, what the heck does she eat? However, I and my partner enjoy my cooking as does my daughter and her family. We do eat lots of fruit and vegetables, meat, fish and use mostly olive oil for cooking although that depends on the origins of the dish.<br />
<br />
Yesterday I made Mary's Mushrooms, based on a Polish recipe from a childhood neighbour whose husband was Polish. I swear you will never taste more mushroomy mushrooms!<br />
<br />
<br />
400g mushrooms, wiped and cubed<br />
2 medium onions, peeled and chopped small<br />
2oz margarine<br />
2 tablespoons flour<br />
Soy milk<br />
Salt and pepper<br />
<br />
Sweat the onions in the marg until soft then add the chopped mushrooms, cook over low to medium heat until all the moisture has come out and cooked off.<br />
<br />
Stir in the flour and cook out for a couple of minutes, add soy milk to give a rich creamy texture, season to taste.<br />
<br />
This freezes well and we love it just with toast (crostini or whatever posh version of toast you prefer) or pasta...if you do eat dairy use butter and cream although it tastes just wonderful as above.<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjGaFjmVDCootcCguG9NrzpvrjtbSLp-llRtCDT9_NxwINjOyRmebDlE7YMkfnwERKf7WwsEWomYmi8g5ZrYgM3sLuGwFz4wZMovJnkpFFRkt_h9E531GBc8KhbH6TqIHuLxyR/s1600/marys+mushrooms.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjGaFjmVDCootcCguG9NrzpvrjtbSLp-llRtCDT9_NxwINjOyRmebDlE7YMkfnwERKf7WwsEWomYmi8g5ZrYgM3sLuGwFz4wZMovJnkpFFRkt_h9E531GBc8KhbH6TqIHuLxyR/s320/marys+mushrooms.jpg" /></a></div>Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-8850395173032526982014-11-16T20:19:00.001+00:002014-11-17T17:54:13.376+00:00We Are Death, Warmed Up | Paul Tomkins<a href="http://www.paultomkins.com/living-with-m-e/we-are-death-warmed-up/">We Are Death, Warmed Up | Paul Tomkins</a><br />
<br />
Tomkins nails it!<br />
<br />
"It is torture, of a kind. The unrelenting jab of needles into the spine. The vice clamped to the temples and tightened. The syringes slowly draining blood from the thighs, injecting concrete into the calves. Poison swelling in the stomach, pumping to the veins, tying knots in the guts.<br />
<br />
You shake, but not in terror. Even the twilight is too bright. Movement sets flotsam and jetsam tumbling about the head; simply sitting up can be a struggle – postural hypertension sending you giddy. Sights and sounds take longer to travel to the brain, the neural pathways fogged and furred with white noise and static. You are <i>death</i>, ever so slightly warmed up.<br />
<br />
This is M.E. as I sometimes experience it, and I’m not one of those acutely affected. I only occasionally feel <i>this</i> ill – usually after any kind of socialising or travelling, or perhaps following a sleepless night.."Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-37766767834146774462014-11-15T08:53:00.001+00:002014-11-17T18:18:09.501+00:00A Study Gives Mysterious Chronic-Fatigue Syndrome Some Legitimacy - The Atlantic<a href="http://www.theatlantic.com/health/archive/2014/11/study-gives-mysterious-chronic-fatigue-syndrome-some-legitimacy/382617/">A Study Gives Mysterious Chronic-Fatigue Syndrome Some Legitimacy - The Atlantic</a><br />
<br />
"The new Stanford discovery provides some verifiable evidence that CFS sufferers can begin to start cashing in on for increased social legitimacy. So while this research gets medicine no closer to relieving sufferers’ physical symptoms, it takes a step toward alleviating the social maladies of people with CFS."<br />
<br />
Not so sure about the phrase "cashing in", to finally be treat by medical professionals without negative preconceptions would be almost a miracle for all of us with M.E. <br />
<br />
Has anyone else experienced offhand, discriminatory treatment?Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-83514262480571358022014-11-15T07:52:00.002+00:002014-11-17T18:17:40.947+00:00Promising research by the The SolveCFS BioBank™ Promising research? "The SolveCFS BioBank™ was approved by the Genetic Alliance for operation in April 2010, launching with a partnership with GlaxoSmithKline (GSK) and several of the top ME/CFS expert clinicians in the U.S. Current research being conducted on the SolveCFS BioBank™ asks specific questions like, <br />
<br />
•Are there autoantibody differences in ME/CFS patients compared to healthy controls?<br />
•Are there immune profile differences in ME/CFS patients compared to healthy controls? <br />
•Are there antibodies to viruses in ME/CFS patients that are different than health controls? <br />
•Are there blood biomarkers that distinguish ME/CFS patients compared to healthy controls? <br />
•Are there epigenetic differences in ME/CFS patients compared to controls? <br />
<br />
Between now and the end of 2014, the Solve ME/CFS Initiative will post several blogs that will describe the exciting research coming from the SolveCFS BioBank™." <a href="http://solvecfs.org/solvecfs-biobank-then-now-the-next-evolution/">solvecfs-biobank</a>Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-63469219688925692752014-11-09T07:43:00.001+00:002014-11-09T07:43:04.504+00:00ITP Support Association<a href="http://www.itpsupport.org.uk/adultitp.htm">ITP Support Association</a> interesting re bruising and bleeding.Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-75365875084284316392014-11-09T07:13:00.001+00:002014-11-09T07:13:27.970+00:00Professor-Surgeon team headed to third phase clinical trials for Fibromyalgia treatmentHopefully a very promising trial..
<a href="http://www.as.ua.edu/home/professor-surgeon-team-headed-to-third-phase-clinical-trials/">Anti viral and anti-immflammatory combination</a>
“Not only that, but many of his patients began having symptoms when they were teenagers, and their symptoms would get worse in times of stress, which seems to indicate a virus. He talked to his mom, who was a virologist, and they thought the symptoms might be caused by a herpes virus because once you have that virus, you have it for life.”
So Pridgen began asking his patients if they would be interested in taking an antiviral medication, Famvir, which prevents various strains of herpes viruses from replicating. Desperate for a solution and with nothing to lose, many of his patients agreed. Some of these very same patients also had symptoms of arthritis, for which Pridgen would give them samples of the anti-inflammatory drug Celebrex.
“Those who took the antiviral came back to his office and admitted they felt better, but not 100 percent better,” Duffy said. “The patients who took both drugs, however, came back and said everything was better. Their fibromyalgia was gone. Their chronic fatigue was gone. Their headaches were gone. All of these things had cleared up. When the first few patients approached him, he thought it was a fluke, but as more and more and more patients said the same thing, he knew it couldn’t be a coincidence.”
Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-84756654705196054332014-11-09T06:58:00.001+00:002014-11-09T06:58:38.616+00:00Migraines and me<span data-ft="{"tn":"K"}" data-reactid=".9.1:3:1:$comment904936466186211_905323252814199:0.0.$right.0.$left.0.0.1:$comment-body"><span class="UFICommentBody" data-reactid=".9.1:3:1:$comment904936466186211_905323252814199:0.0.$right.0.$left.0.0.1:$comment-body.0"><span data-reactid=".9.1:3:1:$comment904936466186211_905323252814199:0.0.$right.0.$left.0.0.1:$comment-body.0.$end:0:$0:0">Migraines feel almost constant, diary reveals have them at least 4 days from 7, pre 2014 used to be intermittent. Cannot have beta blockers as they caused asthma now have for ever, am already on nortryptaline for sleep disorder, this year under GP have been on pizotefen for 3 months then topiramate for months, now off all preventatives awaiting neurologist next February. Have cut painkillers to absolute minimum as they do little for pain really and exacerbate grogginess....nightmare!</span></span></span>Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-78303842836636593452014-11-04T07:19:00.001+00:002014-11-04T07:19:57.243+00:00Reduction of Intraepidermal Nerve Fiber Density (IENFD) in the skin biopsies of patients with fibromyalgia: A controlled study - Journal of the Neurological Sciences<a href="http://www.jns-journal.com/article/S0022-510X(14)00633-9/abstract">Reduction of Intraepidermal Nerve Fiber Density (IENFD) in the skin biopsies of patients with fibromyalgia: A controlled study - Journal of the Neurological Sciences</a><br /><br />
<br /><br />
"Conclusion: This is one of the largest series of FM patients<br />demonstrating a significant reduction of IENFD in their skin biopsies.<br />The findings indicate that in a subset of FM patients, the pain<br />syndrome is, at least partially, of neuropathic origin. Skin biopsy<br />may prove a useful tool and a potential biomarker in future studies of<br />FM patients."Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0tag:blogger.com,1999:blog-5796206.post-47965435460515994252014-11-01T19:01:00.001+00:002014-11-01T19:01:28.793+00:00Brain differences linked to chronic fatigue syndrome - Health News - NHS Choices<a href="http://www.nhs.uk/news/2014/10October/Pages/Brain-differences-linked-to-chronic-fatigue-syndrome.aspx">Brain differences linked to chronic fatigue syndrome - Health News - NHS Choices</a><br /><br />
They found the volume of white matter (nerve fibres) appeared to be lower, on <br />
average, in the people with CFS. There were also differences in the magnitude of <br />
water diffusion (a measure known as fractional anisotropy) in one particular <br />
white matter tract on the right side of the brain, which connects the temporal <br />
with the frontal brain regions.Jenhttp://www.blogger.com/profile/05701939325800656370noreply@blogger.com0