Thursday, February 23, 2012
Everything you need to know about NHS reform in five minutes
Everything you need to know about NHS reform in five minutes Just what Cameron needed lol
Wednesday, February 22, 2012
Save our NHS
Save our NHS
Save our NHS
Save the Date - Save our NHS - 7 March 2012
Join the mass day of action to save our NHS - Wednesday, 7 March from 1pm, Houses of Parliament, London.
Find out the latest transport details and coordinators from Unite's regions.
--------------------------------------------------------------------------------
Get the leaflet here
If you can’t attend the rally you can send a message of opposition to the Bill by texting the word NHS and your message to 86888. Click here to download a leaflet and tell us why you support the NHS.
Help scrap the bill - sign Dr Chand's e-petition: take a minute to save our NHS - http://epetitions.direct.gov.uk/petitions/22670
Our NHS is a national treasure that we should all be proud of. It has cared for generations of working people. It places fairness at the heart of our society.
You need the NHS – now it needs you
Save our NHS
Save the Date - Save our NHS - 7 March 2012
Join the mass day of action to save our NHS - Wednesday, 7 March from 1pm, Houses of Parliament, London.
Find out the latest transport details and coordinators from Unite's regions.
--------------------------------------------------------------------------------
Get the leaflet here
If you can’t attend the rally you can send a message of opposition to the Bill by texting the word NHS and your message to 86888. Click here to download a leaflet and tell us why you support the NHS.
Help scrap the bill - sign Dr Chand's e-petition: take a minute to save our NHS - http://epetitions.direct.gov.uk/petitions/22670
Our NHS is a national treasure that we should all be proud of. It has cared for generations of working people. It places fairness at the heart of our society.
You need the NHS – now it needs you
Friday, February 17, 2012
Tesco latest PR re workfare
(1) How can you justify...
Tesco
H Peter,
JobCentre Plus yesterday wrongly advertised a short work experience placement at Tesco as a permanent, unpaid job. This has resulted in widespread misunderstanding of our position. We are happy to re-state the facts:
- Tesco has been working in partnership with JobCentre Plus for many months to offer work experience opportunities lasting up to four weeks for young unemployed people who are struggling to find jobs. No one is under any obligation to take part in the scheme, and JobCentre Plus has assured us that all of those who have come to Tesco have done so as volunteers. Tesco would not take part in any mandatory scheme. This is all about helping young people who want to find a job.
- We would never offer longer term work on an unpaid basis. The Department for Work and Pensions has acknowledged that the advertisement was an error on the part of JobCentre Plus. Work experience at Tesco should, wherever possible, be a pathway to a paid job with Tesco. That has already been the case for 300 work experience participants with us so far and we hope it will be for many more people.
- We understand the concern that those who stay in the scheme longer than a week risk losing their benefits if they drop out before the end of their placement. We have suggested to DWP that, to avoid any misunderstanding about the voluntary nature of the scheme, this threat of losing benefit should be removed.
We remain committed to offering long-term, sustainable and rewarding paths into employment for thousands of young people.
Thanks
Peter – Customer Care
7 minutes ago · Like
Several posters on the comment thread beneath the story about disabled people being required to do unpaid work have asked for more details of the Department for Work and Pensions' plans. So that readers can see for themselves what the DWP is proposing, we've been working this afternoon on getting the documents online – with some annotation from reporter Shiv Malik – and these will be on the website imminently. http://www.guardian.co.uk/global/blog/2012/feb/17/newsdesk-live-blog-february-17-tuition-fees?newsfeed=true
Tesco
H Peter,
JobCentre Plus yesterday wrongly advertised a short work experience placement at Tesco as a permanent, unpaid job. This has resulted in widespread misunderstanding of our position. We are happy to re-state the facts:
- Tesco has been working in partnership with JobCentre Plus for many months to offer work experience opportunities lasting up to four weeks for young unemployed people who are struggling to find jobs. No one is under any obligation to take part in the scheme, and JobCentre Plus has assured us that all of those who have come to Tesco have done so as volunteers. Tesco would not take part in any mandatory scheme. This is all about helping young people who want to find a job.
- We would never offer longer term work on an unpaid basis. The Department for Work and Pensions has acknowledged that the advertisement was an error on the part of JobCentre Plus. Work experience at Tesco should, wherever possible, be a pathway to a paid job with Tesco. That has already been the case for 300 work experience participants with us so far and we hope it will be for many more people.
- We understand the concern that those who stay in the scheme longer than a week risk losing their benefits if they drop out before the end of their placement. We have suggested to DWP that, to avoid any misunderstanding about the voluntary nature of the scheme, this threat of losing benefit should be removed.
We remain committed to offering long-term, sustainable and rewarding paths into employment for thousands of young people.
Thanks
Peter – Customer Care
7 minutes ago · Like
Several posters on the comment thread beneath the story about disabled people being required to do unpaid work have asked for more details of the Department for Work and Pensions' plans. So that readers can see for themselves what the DWP is proposing, we've been working this afternoon on getting the documents online – with some annotation from reporter Shiv Malik – and these will be on the website imminently. http://www.guardian.co.uk/global/blog/2012/feb/17/newsdesk-live-blog-february-17-tuition-fees?newsfeed=true
Monday, February 06, 2012
FURIOUS! What we're all talking about. Mr. Liddle. | Niamh, me, and M.E
FURIOUS! What we're all talking about. Mr. Liddle. | Niamh, me, and M.E
The gorilla in the room.
I know I said I was going to have a moan about the changes to DLA, and I want to, I just don't have the energy. Trust me it has all got worse in my eyes since yesterday as I've been doing some calculations about what we have coming in, and well basically we don't. So yeah, headless chicken. Anyway will moan about that tomorrow, or the next day, or when I stop worrying about it all long enough to get enough sleep to be able to function well enough to write something that makes sense! Unlike that!
On that note, this entry is something that I saw someone reading on youtube, found it very true and had to find the source and post it on here. I am unsure whether or not I found the original source so I have pasted the link to the blog I stole it from at the end of todays entry.
"Acquiring a disability is a bit like getting home to find there's a gorilla in your house. You contact the approved and official channels to get rid of infestations of wild animals (in this case, the NHS) and they umm and aah and suck air in through their teeth before saying something roughly equivalent to "what you've got 'ere, mate, is a gorilla, and there ain't really a lot what we can do about them, see..." before sending you back home to the gorilla's waiting arms.
The gorilla in your house will cause problems in every part of your life. Your spouse may decide that (s)he can't deal with the gorilla, and leave. Your boss may get upset that you've brought the gorilla to work with you and it's disrupting your colleagues, who don't know how to deal with gorillas. You're arriving for work wearing a suit the gorilla has slept on. Some days you don't turn up at all because at the last minute, the gorilla has decided to barricade you into the bathroom or sit on you so you can't get out of bed. Your friends will get cheesed off because when you see them - which isn't often, because they don't want to come to your house for fear of the gorilla and the gorilla won't always let you out - your only topic of conversation is this darn gorilla and the devastation it is causing.
There are three major approaches to the gorilla in your house.
One is to ignore it and hope it goes away. This is unlikely to work. A 300-lb gorilla will sleep where he likes, and if that's on top of you, it will have an effect on you.
Another is to try and force the gorilla out, wrestling constantly with it, spending all your time fighting it. This is often a losing battle. Some choose to give all their money to people who will come and wave crystals at the gorilla, from a safe distance of course. This also tends to be a losing battle. However, every so often, one in a hundred gorillas will get bored and wander off. The crystal-wavers and gorilla-wrestlers will claim victory, and tell the media that it's a massive breakthrough in gorilla-control, and that the 99 other gorilla-wrestlers just aren't doing it right due to sloppy thinking or lack of commitment. The 99 other gorilla-wrestlers won't have the time or energy to argue.
I have known people spend the best years of their life and tens of thousands of pounds trying to force their gorillas to go away. The tragedy is that even if it does wander off for a while, they won't get their pre-gorilla lives back. They'll be older, skint, exhausted, and constantly afraid that the gorilla may well come back.
The third way to deal with the gorilla in your house is to accept it, tame it, and make it part of your life. Figure out a way to calm your gorilla down. Teach it how to sit still until you are able to take it places with you without it making a scene. Find out how to equip your home with gorilla-friendly furnishings and appliances. Negotiate with your boss about ways to accommodate, or even make use of, your gorilla. Meet other people who live with gorillas and enjoy having something in common, and share gorilla-taming tips.
People get really upset about this and throw around accusations of "giving up" and "not even trying". They even suggest that you enjoy having a gorilla around because of the attention it gets you (while ignoring the massive pile of steaming gorilla-turds in your bedroom every morning and night, not to mention your weekly bill for bananas). The best way to deal with these people is to smile and remind yourself that one day, they too will have a gorilla in their house. "
So true.
The gorilla in the room.
I know I said I was going to have a moan about the changes to DLA, and I want to, I just don't have the energy. Trust me it has all got worse in my eyes since yesterday as I've been doing some calculations about what we have coming in, and well basically we don't. So yeah, headless chicken. Anyway will moan about that tomorrow, or the next day, or when I stop worrying about it all long enough to get enough sleep to be able to function well enough to write something that makes sense! Unlike that!
On that note, this entry is something that I saw someone reading on youtube, found it very true and had to find the source and post it on here. I am unsure whether or not I found the original source so I have pasted the link to the blog I stole it from at the end of todays entry.
"Acquiring a disability is a bit like getting home to find there's a gorilla in your house. You contact the approved and official channels to get rid of infestations of wild animals (in this case, the NHS) and they umm and aah and suck air in through their teeth before saying something roughly equivalent to "what you've got 'ere, mate, is a gorilla, and there ain't really a lot what we can do about them, see..." before sending you back home to the gorilla's waiting arms.
The gorilla in your house will cause problems in every part of your life. Your spouse may decide that (s)he can't deal with the gorilla, and leave. Your boss may get upset that you've brought the gorilla to work with you and it's disrupting your colleagues, who don't know how to deal with gorillas. You're arriving for work wearing a suit the gorilla has slept on. Some days you don't turn up at all because at the last minute, the gorilla has decided to barricade you into the bathroom or sit on you so you can't get out of bed. Your friends will get cheesed off because when you see them - which isn't often, because they don't want to come to your house for fear of the gorilla and the gorilla won't always let you out - your only topic of conversation is this darn gorilla and the devastation it is causing.
There are three major approaches to the gorilla in your house.
One is to ignore it and hope it goes away. This is unlikely to work. A 300-lb gorilla will sleep where he likes, and if that's on top of you, it will have an effect on you.
Another is to try and force the gorilla out, wrestling constantly with it, spending all your time fighting it. This is often a losing battle. Some choose to give all their money to people who will come and wave crystals at the gorilla, from a safe distance of course. This also tends to be a losing battle. However, every so often, one in a hundred gorillas will get bored and wander off. The crystal-wavers and gorilla-wrestlers will claim victory, and tell the media that it's a massive breakthrough in gorilla-control, and that the 99 other gorilla-wrestlers just aren't doing it right due to sloppy thinking or lack of commitment. The 99 other gorilla-wrestlers won't have the time or energy to argue.
I have known people spend the best years of their life and tens of thousands of pounds trying to force their gorillas to go away. The tragedy is that even if it does wander off for a while, they won't get their pre-gorilla lives back. They'll be older, skint, exhausted, and constantly afraid that the gorilla may well come back.
The third way to deal with the gorilla in your house is to accept it, tame it, and make it part of your life. Figure out a way to calm your gorilla down. Teach it how to sit still until you are able to take it places with you without it making a scene. Find out how to equip your home with gorilla-friendly furnishings and appliances. Negotiate with your boss about ways to accommodate, or even make use of, your gorilla. Meet other people who live with gorillas and enjoy having something in common, and share gorilla-taming tips.
People get really upset about this and throw around accusations of "giving up" and "not even trying". They even suggest that you enjoy having a gorilla around because of the attention it gets you (while ignoring the massive pile of steaming gorilla-turds in your bedroom every morning and night, not to mention your weekly bill for bananas). The best way to deal with these people is to smile and remind yourself that one day, they too will have a gorilla in their house. "
So true.
Tuesday, January 31, 2012
M.E. Our priority is reliable independent research | This is Bristol
Our priority is reliable independent research | This is Bristol
Our priority is reliable independent research
.
Monday, January 30, 2012
Bristol Evening Post
Follow.
STARTING this year people who are affected by the illness ME (Myalgic Encephalomyelitis) are invited to become members of an ME Community Trust local support group corresponding to their parliamentary constituency.
For the first time, instead of relying exclusively on volunteers, we are inviting applications for paid positions for administrators, to work remotely from home, for a flexible 16-20 hours (for example, disability claimants who are permitted to earn up to £95 a week, or unemployed people, £120 a week, while still claiming benefit or seeking work) to be paid for, on a non profit basis, from membership subscriptions.
Unlike most organisations, we do not take the view that ME is the same as Chronic Fatigue Syndrome (CFS) but that it is much more than mere tiredness, certainly not laziness, malingering, or some kind of psychological weakness. It is a genuine, seriously disabling illness, with a physiological origin.
We do not accept that conclusions drawn from CFS studies can be applied to people with ME.
We do not, therefore, recommend behavioural techniques or graded exercise, nor do we suggest any other treatment, whether defined as alternative, complementary, radical, or any supplements.
We only advise good primary care from a sympathetic GP for symptom relief and will help members find such a doctor if they have been unable, or feel neglected.
Our priority is reliable, independent, research, designed to seek a universally agreed diagnostic test – such as a blood test or scan – with the aim of suggesting effective treatment in the hope of a cure, or significant recovery, which would be funded by the Trust. In the meantime, members will be given support with benefits claims, practical help with shopping, cleaning and gardening, provided with the latest news and information and given the opportunity to make new friends and contact others in the same boat, by Skype and instant messaging, when they wish and turn it off when they are not able.
Members will pay £2 a week by direct debit, subject to a minimum membership of 100 per constituency area.
This is to cover the salary of the administrator, funding for research and to meet the overheads required to produce a newsletter and cover administrative costs.
We shall still depend on volunteers to keep the subscription at this affordable level.
Exemptions will apply to those for whom cost would bring hardship. Provision will be made for ME sufferers without internet connection to receive information by post or be visited by members who are more able if they wish.
Applications should be made by e-mail, to drjohngreensmith@mecommunitytrust.org
In the subject line Local Support Group, name of your constituency or postcode and in the body of the e-mail your contact details
Or
In the subject line Local Support Group, name of your constituency or postcode and in the body of the e-mail, your CV and contact details
Or you may apply by post to Dr John H Greensmith at the address below.
Dr John H Greensmith
ME Community Trust.org
Downend
Our priority is reliable independent research
.
Monday, January 30, 2012
Bristol Evening Post
Follow.
STARTING this year people who are affected by the illness ME (Myalgic Encephalomyelitis) are invited to become members of an ME Community Trust local support group corresponding to their parliamentary constituency.
For the first time, instead of relying exclusively on volunteers, we are inviting applications for paid positions for administrators, to work remotely from home, for a flexible 16-20 hours (for example, disability claimants who are permitted to earn up to £95 a week, or unemployed people, £120 a week, while still claiming benefit or seeking work) to be paid for, on a non profit basis, from membership subscriptions.
Unlike most organisations, we do not take the view that ME is the same as Chronic Fatigue Syndrome (CFS) but that it is much more than mere tiredness, certainly not laziness, malingering, or some kind of psychological weakness. It is a genuine, seriously disabling illness, with a physiological origin.
We do not accept that conclusions drawn from CFS studies can be applied to people with ME.
We do not, therefore, recommend behavioural techniques or graded exercise, nor do we suggest any other treatment, whether defined as alternative, complementary, radical, or any supplements.
We only advise good primary care from a sympathetic GP for symptom relief and will help members find such a doctor if they have been unable, or feel neglected.
Our priority is reliable, independent, research, designed to seek a universally agreed diagnostic test – such as a blood test or scan – with the aim of suggesting effective treatment in the hope of a cure, or significant recovery, which would be funded by the Trust. In the meantime, members will be given support with benefits claims, practical help with shopping, cleaning and gardening, provided with the latest news and information and given the opportunity to make new friends and contact others in the same boat, by Skype and instant messaging, when they wish and turn it off when they are not able.
Members will pay £2 a week by direct debit, subject to a minimum membership of 100 per constituency area.
This is to cover the salary of the administrator, funding for research and to meet the overheads required to produce a newsletter and cover administrative costs.
We shall still depend on volunteers to keep the subscription at this affordable level.
Exemptions will apply to those for whom cost would bring hardship. Provision will be made for ME sufferers without internet connection to receive information by post or be visited by members who are more able if they wish.
Applications should be made by e-mail, to drjohngreensmith@mecommunitytrust.org
In the subject line Local Support Group, name of your constituency or postcode and in the body of the e-mail your contact details
Or
In the subject line Local Support Group, name of your constituency or postcode and in the body of the e-mail, your CV and contact details
Or you may apply by post to Dr John H Greensmith at the address below.
Dr John H Greensmith
ME Community Trust.org
Downend
Saturday, January 28, 2012
Screening for Alcoholism
Screening for Alcoholism mean corpuscular volume (mcv) not enough on its own to diagnose alcohol abuse
Friday, January 27, 2012
Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising - The Biggest Research Funder in the World on ME/CFS: The NIH on ME/CFS in 2012 Pt. I
Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising - The Biggest Research Funder in the World on ME/CFS: The NIH on ME/CFS in 2012 Pt. I
Round of latest USA research and thinking on CFS/ME
Round of latest USA research and thinking on CFS/ME
Tuesday, January 24, 2012
WTF
Looking back it seems that my GP mentioned that my pains seemed like fibromyalgia late 2003 early 2004 ....must try to find out when she first prescribed me nortryptaline for sleep the accompanying disorder, she consulted rheumatologist at the local hospital about that so I would hope it his somewhere in my notes....reason for my concern...today she denied having diagnosed me with either fibromyalgis or ME...floored and baffled...
Monday, January 09, 2012
Report on the proposed changes to Disability Living Allowanc
A Report on the proposed changes to Disability Living Allowanc
http://dlahelpgroup.com/downloads/Responsible%20Reform.pdf
Friday, December 16, 2011
Psychology of Pain: Fibromyalgia can no longer be called the 'invisible' syndrome
Psychology of Pain: Fibromyalgia can no longer be called the 'invisible' syndrome
Using single photon emission computed tomography (SPECT), researchers in France were able to detect functional abnormalities in certain regions in the brains of patients diagnosed with fibromyalgia, reinforcing the idea that symptoms of the disorder are related to a dysfunction in those parts of the brain where pain is processed.
"Fibromyalgia is frequently considered an 'invisible syndrome' since musculoskeletal imaging is negative," said Eric Guedj, M.D., and lead author of the study. "Past imaging studies of patients with the syndrome, however, have shown above-normal cerebral blood flow (brain perfusion) in some areas of the brain and below-normal in other areas. After performing whole-brain scans on the participants, we used a statistical analysis to study the relationship between functional activity in even the smallest area of the brain and various parameters related to pain, disability and anxiety/depression."
In the study, which was reported in the November issue of The Journal of Nuclear Medicine, 20 women diagnosed with fibromyalgia and 10 healthy women as a control group responded to questionnaires to determine levels of pain, disability, anxiety and depression. SPECT was then performed, and positive and negative correlations were determined.
The researchers confirmed that patients with the syndrome exhibited brain perfusion abnormalities in comparison to the healthy subjects. Further, these abnormalities were found to be directly correlated with the severity of the disease. An increase in perfusion (hyperperfusion) was found in that region of the brain known to discriminate pain intensity, and a decrease (hypoperfusion) was found within those areas thought to be involved in emotional responses to pain.
In the past, some researchers have thought that the pain reported by fibromyalgia patients was the result of depression rather than symptoms of a disorder. "Interestingly, we found that these functional abnormalities were independent of anxiety and depression status," Guedj said.
Thursday, December 01, 2011
Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale
Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale
From comments: "Best article yet on why ME/CFS patients distrust the Center for Disease Control. The author has taken a very complex situation and nailed it. If only everyone in the ME/CFS community unstood the overall situation as well. Please stay with us Mr. Tuller as we need more to understand what's been happening, and to move forward with the equally complex research misunderstandings. This is a truly fine piece of reporting!"
I agree with the commentator
Saturday, October 29, 2011
Treatment Breakthrough (and Paradigm Shift) For CFS? Rituximab Trial Promises Hope
Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising - Treatment Breakthrough (and Paradigm Shift?): Rituximab Trial Works
Hope and pray that this time there is indeed a breakthrough and paradigm shift
Friday, October 28, 2011
i wish...please sign, share and spread as far as you can....
UK Government e-petitions need to secure at least 100,000 signatures before they are debated in Parliament. Two notable debates secured through e-petitions were the recent one calling for the release of all public papers relating to the 1989 Hillsborough football club disaster and this week's highly controversial debate on a European Union referendum
The Government to apologise for its treatment of ME / CFS patients - e-petitions
Please join the group to help raise awareness about Fibromyalgia - with particular emphasis on our annual awareness week every September.
We also run a closed group for fibromyalgia where only group members see postings:
https://www.facebook.com/groups/UKFibromyalgia/169265079831907/?notif_t=group_activity#!/groups/UKFibromyalgia/169265079831907/?notif_t=group_activity
Sunday, October 23, 2011
Norway's Directorate of Health Apologises for Treatment of ME Patients
European ME Alliance - Norway's Directorate of Health Apologises to ME Patients for Poor Treatment
A statement from the Norwegian Directorate of Health has been received where they apologise for not having provided the necessary and proper health services to persons with ME.
Such a public apology from a governmental health agency has never occurred before.
Bjørn Guldvog, Deputy Director General of theNorwegian Directorate of Health made the following statement
"Jeg tror at vi, i for liten grad, har klart å møte menneskene som har kronisk utmattelsessyndrom på en god nok måte. Jeg tror at det er riktig å si at vi ikke har utviklet en god nok helsetjeneste for disse, og det beklager jeg."
"I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."
Can you see similar happening in the UK?
Wednesday, September 14, 2011
Mitochondria, not hypochondria - M.E.
Central Government Issue 21 - Mitochondria, not hypochondria - Public Service
University of Hull Professor of Psychology Rhona Johnston argues against the widespread belief that ME/chronic fatigue is a psychological condition…
Tuesday, September 13, 2011
Low Dose Naltrexone
ITV's Dr Chris Steele supporting the use of Low Dose Naltrexone (LDN)
After some quality recomendations I mentioned this to my GP...the response...but that is only for heroin addicts!
Thursday, September 08, 2011
An average day with fibromyalgia and M.E.
Recently I realised that I am very wary of talking about my illness and how it affects when a family member asked for the umpteenth time what is wrong with me so i sent her the following description of my symptoms on just one day last week plus leaflets for Fibromyalgia and Myalgic Encephalomyelitis (M.E.) / Chronic fatigue syndrome (CFS)
Thank you for wanting to know more, I am perhaps a little reluctant to talk about it all for a number of reasons, they are complex chronic illnesses with such a variety of symptoms that knowing where to start is a problem in itself and it would probably be incredibly boring for you plus it gets me down to dwell on it all too much.
For example, if you were to ask how I am today… the honest answer is shattered as I have been awake since 2am, insomnia has returned recently as part of a more generalised flare up, after a fairly long period of sleeping better due to my GP prescribing nortryptaline after consulting a rheumatologist at the Friarage…
Today I also have lower back pain which has been getting worse over the past week and cramps that had me doubled up this morning, probably due to my irritable bowel syndrome (IBS) which was diagnosed when I was about 22. The doctor recently changed my prescription for IBS as I was soiling myself, hope that settles down. I cannot take any anti imflammatories for the back pain as I was advised to stop them while I have symptoms of gastroesophagal reflux disease (GERDS) – the camera to have a look at my upper digestive tract next week is to check this out. I am thankful that it does not seem to be as bad as a previous period of digestive tract inflammation during which it was inflamed from mouth to bottom, a terrible time. Today the GERDS is tolerable with plenty of gaviscon. The dry eye syndrome is also annoying today but not as bad as it can get – in cold wind my eyes turn bright red and stream tears because they lack the natural oily lubrication….Plenty of neck pain too today plus a fuzzy headache, though again I am thankful it is not worse, as I also get visual migraines which affect my vision so I cannot read or watch TV nor drive..
Basically, I never know how I am going to feel one day to the next, I did rest last Friday as we were looking forward to meeting up at the Village Inn but was still too tired and out of sorts to get ready and had to give up half way through doing my hair.
I will stop there and let you read the leaflets, as to try to list all the symptoms I enjoy at different times would wear us both out.
Hope all that helps explain a little, but if you want to ask me anything about M.E. or Fibro or managing these chronic conditions, fire away, by email is often easier for me especially if I have brain fog which can leave me feeling totally moronic,..
Take care
Love
Jennie
30th August 2011
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