Saturday, October 29, 2011

Treatment Breakthrough (and Paradigm Shift) For CFS? Rituximab Trial Promises Hope

Chronic Fatigue Syndrome (ME/CFS) News From Phoenix Rising - Treatment Breakthrough (and Paradigm Shift?): Rituximab Trial Works Hope and pray that this time there is indeed a breakthrough and paradigm shift

Friday, October 28, 2011

i wish...please sign, share and spread as far as you can.... UK Government e-petitions need to secure at least 100,000 signatures before they are debated in Parliament. Two notable debates secured through e-petitions were the recent one calling for the release of all public papers relating to the 1989 Hillsborough football club disaster and this week's highly controversial debate on a European Union referendum The Government to apologise for its treatment of ME / CFS patients - e-petitions
Just search for UK Fibromyalgia Awareness Raising
Please join the group to help raise awareness about Fibromyalgia - with particular emphasis on our annual awareness week every September. We also run a closed group for fibromyalgia where only group members see postings:!/groups/UKFibromyalgia/169265079831907/?notif_t=group_activity

Sunday, October 23, 2011

Norway's Directorate of Health Apologises for Treatment of ME Patients

European ME Alliance - Norway's Directorate of Health Apologises to ME Patients for Poor Treatment A statement from the Norwegian Directorate of Health has been received where they apologise for not having provided the necessary and proper health services to persons with ME. Such a public apology from a governmental health agency has never occurred before. Bjørn Guldvog, Deputy Director General of theNorwegian Directorate of Health made the following statement "Jeg tror at vi, i for liten grad, har klart å møte menneskene som har kronisk utmattelsessyndrom på en god nok måte. Jeg tror at det er riktig å si at vi ikke har utviklet en god nok helsetjeneste for disse, og det beklager jeg." "I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that." Can you see similar happening in the UK?