Saturday, June 26, 2010

FM/CFS/ME RESOURCES - Keeping A Symptom Journal

FM/CFS/ME RESOURCES - Keeping A Symptom Journal

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Thursday, June 24, 2010

Original Press Release from the Netherlands: FDA and NIH confirm 'XMRV findings'

Original Press Release from the Netherlands: FDA and NIH confirm XMRV findings'

Yipee....to tired to say more but maybe this takes us closer to the tippong point

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Sunday, June 13, 2010

Rough days

Despite still trying to rest more and play more it has beena rough week for me...

Fierce visual "migraine" Thursday morning which left me drained and probably not safe to drive.

Truly terrible stomach cramps Friday evening & night (no obvious trigger)which left me asleep in bed for most of the past 30 hours.

Today, drained and headache...

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Friday, June 11, 2010

CFS Central: BLOOD FEUD

CFS Central: BLOOD FEUD
Great summary!

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Thursday, June 10, 2010

Abundant Evidence ME/CFS is Neurological - Harvard's Dr. Komaroff

Abundant Evidence ME/CFS is Neurological - Harvard's Dr. Komaroff

Notable Quotes
In answer to question # 21 in the Q&A session – “Would you classify CFS as a neurological disease?” Dr. Komaroff stated:

"I would certainly say, as I have said today, that there is now abundant evidence of measurable abnormalities in the central nervous system and the autonomic nervous system in people with this illness. So that makes it neurological. That's why I think it makes sense, as Dr. Gurwitz said, to call it Myalgic Ecephalomyelitis or Encephalopathy, because I think those two words adequately classify or describe an underlying biology that tests have shown to be the case."

In answer to question # 26 - “With respect to the study on the presence of metabolites after exercise, how do patients with depression compare to CFS patients?” Dr. Komaroff stated:

“As a doctor who has taken care of patients with major depression for many years I can’t recall a single instance of someone with major depression saying, ‘The strangest thing has been happening to me, doctor, whenever I do anything, any physical exertion, the next day I feel completely beat up.’ I have never heard that from any patient with any illness other than chronic fatigue syndrome.”

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Friday, June 04, 2010

WPI says New XMRV Diagnostic Test to Be Available by July 1; Announces Arrangements for US & European Testing

WPI says New XMRV Diagnostic Test to Be Available by July 1; Announces Arrangements for US & European Testing

WPI says New XMRV Diagnostic Test to Be Available by July 1; Announces Arrangements for US & European Testing
June 2, 2010


According to a news release published June 1 by the viral testing laboratory VIP Dx (www.vipdx.com):

1. The non-profit Whittemore-Peterson Institute reports that a virus culture test to diagnose XMRV will be available by July 1.

2. VIP Dx will be acquired by & move to the WPI’s new Reno-based Center for Molecular Medicine in August, taking the name Unevx.

3. Testing will be extended to European patients via a non-exclusive licensing agreement with R.E.D. Labs in Belgium.

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Tuesday, June 01, 2010

American Chronicle | The Most Effective Rated Treatments for Chronic Fatigue Syndrome

American Chronicle | The Most Effective Rated Treatments for Chronic Fatigue Syndrome

Norwegian scientists surveyed 828 chronic fatigue syndrome patients to find out what treatments were most and least helpful.

Rest was rated the most helpful by 97% of participants, followed by pacing at 96%.

GET & CBT are slated

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