Thursday, April 12, 2007

Chronic Fatigue Syndrome recorded as a cause of death

Letters to the editor - Sydney Morning Herald.

The "indisputable evidence of inflammation and cell death" observed under the
microscope, in the case of Sophia Mirza, reported to be the first person in
Britain to have had Chronic Fatigue Syndrome officially recorded as a cause of
death (Victims give clues to the answers, Sydney Morning Herald, 12 April
2007), restores Myalgic Encephalomyelitis to its rightful diagnostic place.

There never was a good reason for CFS to displace M.E. Whatever M.E. is, it
certainly isn't fatigue.

Nor was there ever a good reason for M.E to be considered the province of
psychiatrists. There is no evidence of greater incidence of psychiatric
history amongst M.E. sufferers than in the general population and, while
people with M.E. may have understandable concomitant psychological problems,
the one is not a prerequisite for the other.

M.E. sufferers and researchers have been clamouring for decades that CFS has
been holding back research and that, if you don't look for, you're not going
to find the neurological evidence, it was Myalgic Encephalomyelitis all along.
Then we can get down to the business of seeking treatments towards a cure.

You don't have to be much of a specialist of any sort to reckon that it would
be better for all concerned to spend money on neurological testing while M.E.
sufferers are still alive.

Yours sincerely
Dr John H Greensmith
ME Free For


The development of an autopsy protocol may help unlock some of the mysteries of chronic fatigue syndrome, writes Julie Robotham.

UNDER the microscope, it could not have been clearer. Sophia Mirza's brain and spinal fluid showed indisputable evidence of inflammation and cell death...

Fibromyalgia, frozen shoulder and osteopathic treatment

A regional CFS/FMS/MCS group notes that they have seen a couple of incidents of frozen shoulder syndrome in Fibromyalgia patients and recommend this non-invasive, non-surgical osteopathic treatment as developed by English osteopath, Dr. Simeon Niel-Asher

Link frozen shoulder syndrome in Fibromyalgia

Fibromyalgia sufferers should all link to this video

Link Living with Fibromyalgia on You Tube

Few videos mark the stark and devastating nature of Fibromyalgia as this
personal account of living with fibromyalgia that has just been posted on you tube.

Please do watch, comment and link to this to help raise awareness of FM and the effects on all aspects of life if you can.

This young woman's daily struggle vividly illustrates the awful isolation and lack of understanding that still surrounds Fibromyalgia, ME/CFS.

Her story is incredibly moving and courageous - I just wish I could put words together as eloquently as she does- words often seem to evaporate and I am left tongue tied, a major frustration for me.

Link Living with Fibromyalgia on You Tube