Thursday, June 16, 2005

Blood test day...still on the wagon

Been feeling shitty, v v tired, so much so that have had to have various naps. Just hope I can keep it together to finish getting ready for flying off on Saturday.

Shoulder pain in particular is ferocious, back on full diclofenac and co-prox. Dr M could not find a specific spot to inject so that appointment was a dead end road, advised to call physio direct by GP, they were very attentive but advise boiled down to do as little as possible with that arm, do neck exercises as it may be refferred pain from neck and keep taking the tablets. Talked about problems aches cause with trying to exercise to get stronger and she advised walking and cycling plus maybe closed session aqua exercise.

Went to see GP as mood has also been low - advice - maybe up anti depressents after holidays - everyone seems to be pinning hopes on the holiday turning me around and making me work fit.

Bloods today - asked GP about possibility of tests for sticky blood/ Hughes Syndrome and menopause. Too soon for both, the latter because of coil ( 4 years in now....) - needs 2 years without to test conclusivly, the latter - "too soon". If tests are still abnormal she will have to refer me, but would not be drawn as to what referal could reveal.

Anyway, busy day ahead...

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Details on the Specific Carbohydrate Diet

To try after holidays? chronicfatigue.about.com: "The Specific Carbohydrate Diet™ (SCD™) is a grain-free, lactose-free, and sucrose-free diet that was originally designed for Celiac Disease. Today the SCD is also used for Irritable Bowel Syndrome, Candida, Crohn's Disease, Ulcerative Colitis, Diverticulitis, Cystic Fibrosis, and Chronic Diarrhea. The SCD™ is proving helpful to many with Chronic Fatigue Syndrome and Fibromyalgia as well."

The Legal / Illegal list a-cList compiled by Kim Hesche: "The following is a list of foods that are allowed (legal) and foods that are not allowed (illegal) while following the Specific Carbohydrate Diet™, as outlined in the book,
Breaking the Vicious Cycle by Elaine Gottschall. The SCD™ is a progressive diet and the introduction of many of these foods should be delayed until healing has taken place, please read the book "Breaking the Vicious Cycle" for further information.

Some general guidelines are, no grains (i.e. rice, wheat, corn, oats, etc.), no processed foods, no starchy vegetables (i.e. potatoes, yams, etc.), no canned vegetables of any kind, no flour, no sugar, no sweeteners other than honey and saccharin, and no milk products except for homemade yogurt fermented for 24 hours, prepared according to the instructions in the book."

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Monday, June 13, 2005

Hughes Syndrome Foundation: Sticky blood

Those words "Sticky blood" still haunt me from the roasting Dr V gave me, blaming it on my alcohol intake at a time when I knew I was drinking very little...
Welcome to the Official Home Page of the Hughes Syndrome Foundation:
"Headache
Migraine
Memory Loss
These are all features of HUGHES SYNDROME often known as Sticky blood, or by doctors as:
The Antiphospholipid Syndrome
Young Stroke...
Miscarriage...
Thrombosis e.g. DVT...
Infertility...
Multiple Sclerosis"

Hope to get tested....

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Sunday, June 12, 2005

Sunday blues

woke feeling low...to be told I should be full of the joys with holiday ever nearer.

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Saturday, June 11, 2005

One week to go

before blood test and than holidays....

Still zero alcohol since the start of May and still going to the gym at least 2 times a week although the 45mins classes leave me with minor fibro flare up the next day - brain fog, pain and tired - I think my tolerance to exercise is increasing. Big bonus is that my bum looks in better shape, mainly cos the BLT class suits best for various reasons.

Feeling pretty low however and have no idea what the future holds but hope to get myself together after the holidays and back to work ASAP - god knows where will have me though, only able to do 4 hours max on a good day and never know when those will be! I wouldn't employ me.

Good news is Pete's back seems better.

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